The Trisomy Life

My first ever photo of me with my son just a few hours after this birth Trisomy is a death sentence. The question is: how long can death be avoided?  Fortunately, there's another question parents can ask themselves: How much joy can I possibly fit into my child's life before they are taken from me? This question is the one you want to be asking yourself on a daily basis, as the parent of a trisomy child. The other question is the one that just sits in the background at all times. It's the one you know deep in your heart, in the back of your mind; the one that slowly tears you apart bit by bit, ripping tiny pieces out of you, forcing the tears from your eyes at random times throughout the week; the question you'll want more than anything else to ignore, to forget, to be given a happy answer to; the one that you'll always know you did your best to answer sensibly, in his/her best interest, with no motivation other than what is good and right for your child. It's ...